An artistic collaboration between my sister and me, exploring Spondyloepiphyseal dysplasia (SED), a bone condition we’ve had since birth. SED causes a variety of issues, including short stature, scoliosis, chronic joint pain, neck instability, collagen deficiency and retinal detachment. We combined poetry and photography to provide a portrait of how SED affects the body and how the condition presents itself differently, even in sisters.

 

This project has become an avenue for me to overcome the challenges I experience every day because of this disorder. Transforming these challenges into artwork helps me look at it objectively. This allows me to learn to love these parts of my life with the same passion I love my artwork.